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Titre : | Usability and Reliability of an Accessible Patient-Reported Outcome Measure (PROM) Software: The Pediatric Evaluation of Disability InventoryPatient-Reported Outcome (PEDIPRO) (2021) |
Auteurs : | Jessica M. Kramer ; Ariel Schwartz ; Daniel K. Davies ; Steven E. Stock ; Pengsheng Ni |
Type de document : | Article |
Dans : | American journal of occupational therapy (Vol. 75, n° 1, January/February 2021) |
Article en page(s) : | p. 1-10 |
Note générale : | doi:10.5014/ajot.2020.040733 |
Langues: | Anglais |
Descripteurs : |
HE Vinci Incapacités de développement ; Pédiatrie |
Mots-clés: | Résultats rapportés par les patients |
Résumé : |
Importance: Patient-reported outcome measures (PROMs) are used in rehabilitation to evaluate outcomes. We integrated a new PROM for transition-age youth with intellectual and/or developmental disabilities (IDD), the Pediatric Evaluation of Disability InventoryPatient-Reported Outcome (PEDIPRO), with a computer-delivered survey platform (Accessible Testing Learning and Assessment System) to enhance cognitive accessibility.
Objective: To evaluate the usability of the PEDIPRO software and to investigate its reliability and acceptability to transition-age youth with IDD. Design: Clinical field testing and a survey; repeated-observation testretest design. Setting: Clinicians evaluated the PEDIPRO's usability in school and health care contexts; research staff conducted reliability and acceptability testing in natural settings. Participants: Occupational therapists (n = 12) and physical therapists (n = 2) administered the PEDIPRO to 39 youths with IDD. Fifty-five transition-age youth with IDD (M age = 19.7) completed the PEDIPRO twice. Outcomes and Measures: Clinicians completed the System Usability Survey (SUS) and open-ended feedback. Youth provided feedback via a brief survey. Results: The mean SUS rating was 84.00 (SD = 11.68), exceeding the industry standard. Intraclass correlations ranged from.80 to.83 across the three PEDIPRO domains. Internal reliability (α) was.86.90 across domains. Youth reported that they liked the accessibility features: interface images, button sounds, read-aloud audio, and rating category choices (M = 88.8%, SD = 5.1%). Conclusions and Relevance: The PEDIPRO supported transition-age youth with IDD to reliably report perceived functional performance. The accessible software was favorably perceived by both clinicians and youth. What This Article Adds: Design features of the PEDIPRO make it easy to use in practice with transition-age youth with IDD. The PEDIPRO's cognitively accessible administrative design, including step-by-step instructions for teaching PROM use and a self-reflective questioning technique, could serve as a training model for this and other PROMs. |
Disponible en ligne : | Oui |
En ligne : | http://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=147924413&site=ehost-live |