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Titre : | Pilot Study of a Self-Management Program for Parents With Spinal Cord Injury or Disease (2021) |
Auteurs : | Carla Wilson Walker ; Mary Holowatuk ; Jessica Dashner |
Type de document : | Article |
Dans : | American journal of occupational therapy (Vol. 75, n° 1, January/February 2021) |
Article en page(s) : | p. 1-10 |
Note générale : | doi:10.5014/ajot.2020.036574 |
Langues: | Anglais |
Descripteurs : |
HE Vinci Auto-efficacité ; Autosoins ; Connaissances, attitudes et pratiques en santé ; Maladies de la moelle épinière ; Mise au point de programmes ; Parents ; Traumatismes de la moelle épinière |
Résumé : |
Importance: This study lays the groundwork for a self-management program run by occupational therapy practitioners for parents with spinal cord injury or disease (SCI/D).
Objective: To develop and implement the Parenting Self-Management Program with people with SCI/D and evaluate the potential impact on knowledge, self-efficacy, and participation. Design: A mixed-methods approach was used to develop (Phase 1) and implement and evaluate (Phase 2) a pilot group intervention for parents with SCI/D. Setting: Community-based occupational therapy settings. Participants: Phase 1 participants were professionals working in the field of disability and SCI/D (n = 11) and experienced parents with SCI/D (n = 9). Phase 2 participants were people with SCI/D who were newly injured or inexperienced in parenting (n = 10). All participants were paid volunteers. Intervention: The 4-wk Parenting Self-Management Program was piloted with 10 parents with SCI/D. Participants attended a weekly program with other parents with SCI/D led by occupational therapists in which they received parenting resources and presentations and set weekly goals. Outcomes and Measures: The General Self-Efficacy Scale, a modified version of the Participation Survey/Mobility, and open-ended questions regarding parents' participation in parenting tasks were administered during Phase 2. Results: Significant increases (p <.05 in perceived knowledge were found for the topics of emergency preparedness home modifications adapted equipment fatigue management pain and community resources among phase participants.> Conclusions and Relevance: A self-management approach combined with pertinent resources for parents with SCI/D yielded positive outcomes. What This Article Adds: This research demonstrates that a self-management structure for a specific population (people with SCI/D) in combination with a targeted occupation (parenting) and delivered through group occupational therapy services, improved client outcomes. |
Disponible en ligne : | Oui |
En ligne : | https://login.ezproxy.vinci.be/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=147924419&site=ehost-live |