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Titre : | An exploration of significant others experience with ongoing vestibular disorders (2020) |
Auteurs : | Lauren Story ; Caitlin Barr ; Richard C. Dowell |
Type de document : | Article |
Dans : | International Journal of Audiology IJA (Vol. 59, n°3, Mars 2020) |
Article en page(s) : | p. 179-185 |
Langues: | Anglais |
Descripteurs : |
HE Vinci Fonction vestibulaire ; Soins infirmiers auprès des familles |
Résumé : |
To understand the lived experiences of Significant Others (SOs) of people with ongoing vestibular symptoms.
Design: Qualitative semi-structured interviews were conducted and analysed using thematic analysis. Study sample: Ten SOs of people with ongoing vestibular symptoms were interviewed. Maximum variation sampling was used. Results: Four predominant themes were identified from the data: (1) Journey The progression of learning to understand, cope and adapt with a family members vestibular condition is a unique journey; (2) Ownership Participants reported varying levels of ownership of their family members vestibular condition. Those who considered the vestibular condition as a joint problem were often more burdened by feelings of guilt and redundancy; (3) Intangibility Participants reported inconsistent advice from healthcare professionals, struggles with understanding, and challenges obtaining a shared understanding with their own support networks; (4) Disempowerment SOs were left feeling powerless due to not knowing what to do for a family member when they experienced vestibular symptoms, and not having a comprehensive understanding of the vestibular condition. Conclusions: Ongoing vestibular symptoms have significant and diverse impacts on SOs. This study reveals a need for tailored support of SOs and supports the practice of family-centred care in this population. |
Accès : | Contactez la bibliothèque d'Ixelles si le lien vers la ressource électronique ne fonctionne plus |
Disponible en ligne : | Oui |
En ligne : | https://login.ezproxy.vinci.be/login?url=https://www.tandfonline.com/doi/pdf/10.1080/14992027.2019.1678075?needAccess=true |