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Titre : | Associations of Participation-Focused Strategies and Rehabilitation Service Use With Caregiver Stress After Pediatric Critical Illness (2019) |
Auteurs : | Jessica M. Jarvis ; Karen Choong ; Mary A. Khetani |
Type de document : | Article |
Dans : | Archives of Physical Medicine and Rehabilitation (Vol. 100, n° 4, 2019) |
Article en page(s) : | p. 703-710 |
Langues: | Anglais |
Descripteurs : |
HE Vinci Pédiatrie ; Rééducation et réadaptation ; Soins de réanimation |
Résumé : |
Objective(s)
Determine the associations between having participation-focused strategies and receiving rehabilitation services in the pediatric intensive care unit (PICU) with caregiver stress over 6 months post-PICU discharge. Design Substudy of a data from Wee-Cover, a prospective cohort study. Setting Two PICU sites. Participants Caregivers (N=168) of children 1-17 years old admitted into a PICU for ≥48 hours. Main Outcome Measures Data were collected from caregivers at enrollment and 3 and 6 months post-PICU discharge. Caregiver stress was assessed using the Pediatric Inventory for Parents. Having strategies to support their childs participation in home-based activities was assessed using the Participation and Environment Measure (PEM). In PEM, caregivers report on strategies used to support their childs participation in home-based activities. Data were dichotomized (yes, no) to denote having participation-focused strategies and if their child received PICU rehabilitation services. Additional covariates were history of a preexisting condition, child age, length of PICU stay, and change in functional capacities at PICU discharge. Results History of a preexisting condition, time, and change in functional capacities significantly predicted caregiver stress frequency and difficulty. The interaction of having strategies-by-rehabilitation-by-time significantly predicted caregiver stress frequency and difficulty. Conclusion(s) Results highlight the role of early rehabilitation and the importance of working with caregivers to develop participation-focused strategies to support their childs functioning post-PICU. Families of children with a preexisting condition or those who experience a decrease in function during a PICU stay are susceptible to higher levels of stress and may be a priority population to target for rehabilitation services. |
Disponible en ligne : | Oui |
En ligne : | https://login.ezproxy.vinci.be/login?url=https://www.sciencedirect.com/science/article/pii/S0003999318315399 |