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Titre : | Room for Improvement : Patient, Parent, and Practitioners' Perceptions of Foot Problems and Foot Care in Juvenile Idiopathic Arthritis (2012) |
Auteurs : | Gordon J. Hendry ; Debbie E. Turner ; Paula K. Lorgelly ; James Woodburn |
Type de document : | Article |
Dans : | Archives of Physical Medicine and Rehabilitation (2012/11, 2012) |
Article en page(s) : | pp. 2062-2067 |
Langues: | Anglais |
Descripteurs : |
HE Vinci Arthrite juvénile ; Pied ; Podologie ; Recherche qualitative ; Rééducation et réadaptation |
Mots-clés: | Arthritis ; Juvenile Rheumatoid ; Foot ; Qualitative research ; Podiatry |
Résumé : |
"Objective To explore the perceived impact of disease-related foot problems and foot care in juvenile idiopathic arthritis (JIA) from the perspectives of patients, parents, pediatric rheumatologists, and health professionals. Design A qualitative study using an interpretative phenomenological approach. Setting Outpatients department, public health service children's hospital. Participants Patients (N=15; 4 adult patients, 2 parents of children with JIA, 3 pediatric rheumatologists, and 6 health professionals) from 2 National Health Service rheumatology centers (1 pediatric and 1 adult). Interventions Not applicable. Main Outcome Measures Qualitative outcomes were participants' perceptions elicited using semistructured interviews (telephone or face-to-face) and focus groups using an interpretative phenomenological approach. A data-driven inductive approach to coding and theme development was adopted for transcript analysis. Results Participants volunteered to take part in a total of 7 interviews and 2 focus groups. The analysis revealed 6 key themes related to the impact of foot problems and perceptions of foot care from respective groups. These were the following: (1) pain, (2) mobility impairment, (3) reduced ability to perform activities of daily living, (4) footwear difficulties, (5) poor referral pathways/delayed access to care, and (6) lack of evidence in support of conservative foot care. Conclusions Several areas for development of foot care services were identified including a need for improved referral pathways, shorter waiting times for initial consultations, greater attention to patient compliance, and a need for better evidence in support of customized foot orthoses. Several key foot health-related outcomes were identified, which may be of importance for measuring therapeutic response to foot-related interventions." |
Disponible en ligne : | Oui |
En ligne : | http://www.archives-pmr.org/article/S0003-9993(12)00546-1/abstract |