117 résultat(s) recherche sur le mot-clé 'Quality of life'    

Quality of Life and Adaptation in People With Spinal Cord Injury: Response Shift Effects From 1 to 5 Years Postinjury / Carolyn E. Schwartz in Archives of Physical Medicine and Rehabilitation, Vol. 99, n° 8 (2018)  

[article]  inArchives of Physical Medicine and Rehabilitation > Vol. 99, n° 8 (2018) . - p. 1599-1608 Titre : Quality of Life and Adaptation in People With Spinal Cord Injury: Response Shift Effects From 1 to 5 Years Postinjury Type de document : Article Auteurs : Carolyn E. Schwartz ; Brian Stucky ; Carly S. Rivers Article en page(s) : p. 1599-1608 Langues : Anglais (eng) Descripteurs : HE Vinci Adaptation ; Adaptation psychologique ; Qualité de vie ; Rééducation et réadaptation ; Résilience psychologique ; Traumatismes de la moelle épinière Mots-clés : psychological  Psychological Phenomena and Processes  Phénomènes et processus psychologiques  Psychological theory  Théorie psychologique  Psychology  applied  Psychologie appliquée  Quality of life  Résilience psychologique  Spinal cord injuries Résumé : Objective To investigate response shift effects in spinal cord injury (SCI) over 5 years postinjury. Design Prospective cohort study observed at 1, 2, and 5 years post-SCI. Setting Specialized SCI centers. Participants Sample included 1125, 760, and 219 participants at 1, 2, and 5 years post-SCI (N = 2104). The study sample was 79% men; 39% were motor/sensory complete (mean age, 44.6+18.3y). Interventions Not applicable. Main Outcome Measures Patient-reported outcomes included the Medical Outcomes Study 36-Item Short-Form Health Survey version 2 and the Life Satisfaction-11 Questionnaire. Participant latent variable scores were adjusted for (1) potential attrition bias and (2) propensity scores reflecting risk of worse outcomes. The Oort structural equation modeling approach for detecting and accounting for response shift effects was used to test the hypothesis that people with SCI would undergo response shifts over follow-up. Results The study data comprised the time after FIM scores, an objective measure of motor and cognitive function, had improved and stabilized. Three latent variables (Physical, Mental, and Symptoms) were modeled over time. The response shift model indicated uniform recalibration and reconceptualization response shift effects over time. When adjusted for these response shift effects, Physical showed small true change improvements at 2- and 5-year follow-up, despite FIM stability. Conclusions We detected recalibration and reconceptualization response shift effects in 1- to 5-year follow-up of people with SCI. Despite stable motor and cognitive function, people with SCI are adapting to their condition. This adaptation reflects a progressive disconnection between symptoms and physical or mental health, and a real improvement in the Physical latent variable. Disponible en ligne : Oui En ligne : https://login.ezproxy.vinci.be/login?url=https://www.sciencedirect.com/science/a [...] Permalink : https://bib.vinci.be/opac_css/index.php?lvl=notice_display&id=118880 [article]

Quality of Life and Psychosocial Well-Being in Youth With Neuromuscular Disorders Who Are Wheelchair Users: A Systematic Review / Vivienne Travlos in Archives of Physical Medicine and Rehabilitation, 2017/5 (2017)  

[article]  inArchives of Physical Medicine and Rehabilitation > 2017/5 (2017) . - pp. 1004-1017 Titre : Quality of Life and Psychosocial Well-Being in Youth With Neuromuscular Disorders Who Are Wheelchair Users: A Systematic Review Type de document : Article Auteurs : Vivienne Travlos ; Shane Patman ; Andrew Wilson Article en page(s) : pp. 1004-1017 Langues : Anglais (eng) Descripteurs : HE Vinci Adolescent ; Participation sociale ; Qualité de vie ; Rééducation et réadaptation ; Santé mentale Mots-clés : Mental health  Neuromuscular diseases  Maladies neuromusculaires  Quality of life  Social participation Résumé : Objective To investigate quality of life (QOL) and psychosocial well-being in youth with neuromuscular disorders (NMDs) who are wheelchair users. Data Sources MEDLINE, Embase, CINAHL, and PsycINFO (January 2004–April 2016) and reference lists of retrieved full-text articles. Study Selection Peer-reviewed studies were included when data describing self-reported QOL and psychosocial well-being could be separately understood for those using wheelchairs and 12 to 22 years of age. There were 2058 records independently screened, and potentially eligible articles were obtained and examined by all reviewers. Twelve observational and 3 qualitative studies met the inclusion criteria. Data Extraction Population representativeness, measurement tools, and outcomes, where possible, with comparison groups. Two reviewers independently appraised studies for risk of bias to internal validity and generalizability. Data Synthesis Heterogeneity of measurement and reporting precluded meta-analysis. Data were cross-sectional only. Compared with same-age typically developing peers, physical QOL was scored consistently and significantly lower in youth with NMDs, whereas psychosocial QOL was not. Psychosocial QOL was highest in youth nonambulant since early childhood and in those recruited via single tertiary specialist clinics. Mental health and social participation could not be compared with same-age populations. Conclusions Despite low physical QOL, psychosocial QOL in youth with NMDs appeared comparable with same-age peers. The psychosocial well-being of younger adolescents on degenerative disease trajectories appeared most compromised; however, the longitudinal effects of growing up with a NMD on mental health and social participation are unknown. Interpretation was hampered by poor description of participant age, sex and physical ability; lack of population-based recruitment strategies; and inconsistent use of age-appropriate measures. Understanding of self-reported QOL and psychosocial well-being in youth with NMDs transitioning to adulthood is limited. Disponible en ligne : Oui En ligne : https://login.ezproxy.vinci.be/login?url=https://www.sciencedirect.com/science/a [...] Permalink : https://bib.vinci.be/opac_css/index.php?lvl=notice_display&id=117755 [article]

Agreement Between Responses From Community-Dwelling Persons With Stroke and Their Proxies on the NIH Neurological Quality of Life (Neuro-QoL) Short Forms / Allan J. Kozlowski in Archives of Physical Medicine and Rehabilitation, 2015/11 (2015)  

[article]  inArchives of Physical Medicine and Rehabilitation > 2015/11 (2015) . - pp. 1986–1992 Titre : Agreement Between Responses From Community-Dwelling Persons With Stroke and Their Proxies on the NIH Neurological Quality of Life (Neuro-QoL) Short Forms Type de document : Article Auteurs : Allan J. Kozlowski ; Ritika Singh ; David Victorson Article en page(s) : pp. 1986–1992 Langues : Anglais (eng) Descripteurs : HE Vinci Accident vasculaire cérébral (AVC) ; Mandataire ; Qualité de vie ; Rééducation et réadaptation Mots-clés : Proxy  Quality of life  Stroke Résumé : Objective To examine agreement between patient and proxy responses on the Quality of Life in Neurological Disorders (Neuro-QoL) instruments after stroke. Design Cross-sectional observational substudy of the longitudinal, multisite, multicondition Neuro-QoL validation study. Setting In-person, interview-guided, patient-reported outcomes. Participants Convenience sample of dyads (N=86) of community-dwelling persons with stroke and their proxy respondents. Interventions Not applicable. Main Outcome Measures Dyads concurrently completed short forms of 8 or 9 items for the 13 Neuro-QoL adult domains using the patient-proxy perspective. Agreement was examined at the scale-level with difference scores, intraclass correlation coefficients (ICCs), effect size statistics, and Bland-Altman plots, and at the item-level with kappa coefficients. Results We found no mean differences between patients and proxies on the Applied Cognition–General Concerns, Depression, Satisfaction With Social Roles and Activities, Stigma, and Upper Extremity Function (Fine Motor, activities of daily living) short forms. Patients rated themselves more favorably on the Applied Cognition–Executive Function, Ability to Participate in Social Roles and Activities, Lower Extremity Function (Mobility), Positive Affect and Well-Being, Anxiety, Emotional and Behavioral Dyscontrol, and Fatigue short forms. The largest mean patient-proxy difference observed was 3 T-score points on the Lower Extremity Function (Mobility). ICCs ranged from .34 to .59. However, limits of agreement showed dyad differences exceeding +20 T-score points, and item-level agreement ranged from not significant to weighted kappa=.34. Conclusions Proxy responses on Neuro-QoL short forms can complement responses of moderate- to high-functioning community-dwelling persons with stroke and augment group-level analyses, but do not substitute for individual patient ratings. Validation is needed for other stroke populations. Disponible en ligne : Oui En ligne : https://login.ezproxy.vinci.be/login?url=https://www.sciencedirect.com/science/a [...] Permalink : https://bib.vinci.be/opac_css/index.php?lvl=notice_display&id=118235 [article]

Apathy and Health-Related Quality of Life in Stroke / Wai-Kwong Tang in Archives of Physical Medicine and Rehabilitation, 2014/5 (2014)  

[article]  inArchives of Physical Medicine and Rehabilitation > 2014/5 (2014) . - p. 857-861 Titre : Apathy and Health-Related Quality of Life in Stroke Type de document : Article Auteurs : Wai-Kwong Tang ; Grace Lau Chieh ; Vincent Mok Article en page(s) : p. 857-861 Langues : Anglais (eng) Descripteurs : HE Vinci Accident vasculaire cérébral (AVC) ; Apathie ; Qualité de vie ; Rééducation et réadaptation Mots-clés : Apathy  Quality of life  Stroke Résumé : Objective To examine differences in health-related quality of life (HRQOL) in stroke survivors with and without apathy. Design Cross-sectional study. Setting Acute stroke unit in a regional hospital. Participants Stroke survivors (N=391) recruited from the acute stroke unit. Interventions Not applicable. Main Outcome Measures Participants were divided into apathy and nonapathy groups. Participants who scored ≥36 on the Apathy Evaluation Scale, clinician's version formed the apathy group. HRQOL was measured with the 2 component scores, mental component summary (MCS) and physical component summary (PCS), of the Medical Outcomes Study 12-Item Short-Form Health Survey (SF-12). Demographic and clinical information were obtained with the National Institutes of Health Stroke Scale (NIHSS), Barthel Index (BI), Mini-Mental State Examination (MMSE), and Geriatric Depression Scale (GDS). Results Thirty-six (9%) participants had apathy. The apathy group had significantly lower MCS and PCS scores. After adjusting for sex, education, diabetes mellitus, and NIHSS, MMSE, GDS, and BI scores, the MCS score in the apathy group remained significantly lower. Conclusions Apathy has a significant negative effect on HRQOL in stroke survivors, particularly on their mental health. Interventions for apathy could improve the HRQOL of stroke survivors. Disponible en ligne : Oui En ligne : https://login.ezproxy.vinci.be/login?url=https://www.sciencedirect.com/journal/a [...] Permalink : https://bib.vinci.be/opac_css/index.php?lvl=notice_display&id=119028 [article]

Association of Posttraumatic Stress Symptom Severity With Health-Related Quality of Life and Self-Reported Functioning Across 12 Months After Severe Traumatic Brain Injury / Colin M. Bosma in Archives of Physical Medicine and Rehabilitation, Vol. 99, n° 8 (2018)  

[article]  inArchives of Physical Medicine and Rehabilitation > Vol. 99, n° 8 (2018) . - p. 1576-1583 Titre : Association of Posttraumatic Stress Symptom Severity With Health-Related Quality of Life and Self-Reported Functioning Across 12 Months After Severe Traumatic Brain Injury Type de document : Article Auteurs : Colin M. Bosma ; Nashwa Mansoor ; Chiara S. Haller Article en page(s) : p. 1576-1583 Langues : Anglais (eng) Descripteurs : HE Vinci Qualité de vie ; Rééducation et réadaptation ; Troubles de stress post-traumatique Mots-clés : Quality of life  Stress disorders  post-traumatic  Brain Injuries  Traumatic  Lésions traumatiques de l'encéphale Résumé : Objective To investigate the relation between posttraumatic stress (PTS) symptom severity and health-related quality of life (HRQoL) after severe traumatic brain injury (TBI). Design Longitudinal prospective multicenter, cohort study on severe TBI in Switzerland (2007–2011). Setting Hospital, rehabilitation unit, and/or patient’s living facility. Participants Patients with severe TBI (N=109) were included in the analyses. Injury severity was determined using the Abbreviated Injury Score of the head region after clinical assessment and initial computed tomography scan. Interventions Not applicable. Main Outcome Measures HRQoL (Medical Outcomes Study 12-Item Short-Form Health Survey Physical and Mental Component Summaries) and self-reported emotional, cognitive, and interpersonal functioning (Patient Competency Rating Scale for Neurorehabilitation). Results Multilevel models for patients >50 and ≤50 years of age revealed significant negative associations between PTS symptom severity and interpersonal functioning (P<.001 and p=".002)," respectively. among patients years of age pts symptom severity was significantly associated with total functioning emotional all cognitive mental hrqol> Conclusions Findings indicate that PTS symptoms after severe TBI are negatively associated with HRQoL and emotional, cognitive, and interpersonal functioning. Disponible en ligne : Oui En ligne : https://login.ezproxy.vinci.be/login?url=https://www.sciencedirect.com/science/a [...] Permalink : https://bib.vinci.be/opac_css/index.php?lvl=notice_display&id=118877 [article]

Changes in Gross Motor Function and Health-Related Quality of Life in Adults With Cerebral Palsy: An 8-Year Follow-Up Study / Koyo Usuba in Archives of Physical Medicine and Rehabilitation, 2014/11 (2014)  

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Comparative Evaluation of Health-Related Quality of Life Questionnaires in Patients With Heart Failure Undergoing Cardiac Rehabilitation: A Psychometric Study / Fatemeh Rajati in Archives of Physical Medicine and Rehabilitation, 2016/11 (2016)  

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Coping, Problem Solving, Depression, and Health-Related Quality of Life in Patients Receiving Outpatient Stroke Rehabilitation / Marieke M. Visser in Archives of Physical Medicine and Rehabilitation, 2015/8 (2015)  

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Developing an Item Bank to Measure Economic Quality of Life for Individuals With Disabilities / David S. Tulsky in Archives of Physical Medicine and Rehabilitation, 2015/4 (2015)  

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Differences in Quality of Life Outcomes Among Depressed Spinal Cord Injury Trial Participants / Denise G. Tate in Archives of Physical Medicine and Rehabilitation, 2015/2 (2015)  

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Do Performance Measures of Strength, Balance, and Mobility Predict Quality of Life and Community Reintegration After Stroke? / Joshua W. Cohen in Archives of Physical Medicine and Rehabilitation, Vol. 99, n° 4 (2018)  

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Effect of Aquatic Exercise Training on Fatigue and Health-Related Quality of Life in Patients With Multiple Sclerosis / Mehdi Kargarfard in Archives of Physical Medicine and Rehabilitation, 2012/10 (2012)  

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Effects of 12-week whole-body vibration exercise on fatigue, functional ability and quality of life in women with systemic lupus erythematosus / Patrícia Lopes-Souza in Journal of Bodywork and Movement Therapies, Vol. 27 (July 2021)  

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Effects of pilates on physical-functional performance, quality of life and mood in older adults / Vanessa Raquel Metz ; Katia Bilhar Scapini ; Amanda Lorena Dias Gomes ; Rodrigo Maciel Andrade ; Guilherme Carlos Brech ; Angélica Castilho Alonso in Journal of Bodywork and Movement Therapies, Vol. 28 (October 2021)  

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Effects of a pre-operative home-based inspiratory muscle training programme on perceived health-related quality of life in patients undergoing coronary artery bypass graft surgery / K. Valkenet in Physiotherapy, 2017/3 (2017)  

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Epidural Steroids for Lumbosacral Radicular Syndrome Compared to Usual Care: Quality of Life and Cost Utility in General Practice / Antje Spijker-Huiges in Archives of Physical Medicine and Rehabilitation, 2015/3 (2015)  

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Evaluating Individual Change With the Quality of Life in Neurological Disorders (Neuro-QoL) Short Forms / Allan J. Kozlowski in Archives of Physical Medicine and Rehabilitation, 2016/4 (2016)  

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Evaluating a Spinal Cord Injury–Specific Model of Depression and Quality of Life / Narineh Hartoonian in Archives of Physical Medicine and Rehabilitation, 2014/3 (2014)  

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Health Conditions: Effect on Function, Health-Related Quality of Life, and Life Satisfaction After Traumatic Spinal Cord Injury. A Prospective Observational Registry Cohort Study / Carly S. Rivers in Archives of Physical Medicine and Rehabilitation, Vol. 99, n° 3 (2018)  

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Health-Related Quality of Life 3 Years After Moderate to Severe Traumatic Brain Injury: A Prospective Cohort Study / Erik Grauwmeijer in Archives of Physical Medicine and Rehabilitation, 2014/7 (2014)  

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Health-Related Quality of Life in Caregivers of Individuals With Traumatic Brain Injury: Development of a Conceptual Model / Noelle E. Carlozzi in Archives of Physical Medicine and Rehabilitation, 2015/1 (2015)  

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Home-Based Exercise Enhances Health-Related Quality of Life in Persons With Spinal Cord Injury: A Randomized Controlled Trial / Tom E. Nightingale in Archives of Physical Medicine and Rehabilitation, Vol. 99, n° 10 (2018)  

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Hospital Delirium and Psychological Distress at 1 Year and Health-Related Quality of Life After Moderate-to-Severe Traumatic Injury Without Intracranial Hemorrhage / Christine M. Abraham in Archives of Physical Medicine and Rehabilitation, 2014/12 (2014)  

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Impact of Anxiety on Health-Related Quality of Life After Stroke: A Cross-Sectional Study / Wai-Kwong Tang in Archives of Physical Medicine and Rehabilitation, 2013/12 (2013)  

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Impact of Blood Pressure Dysregulation on Health-Related Quality of Life in Persons With Spinal Cord Injury: Development of a Conceptual Model / Noëlle Carlozzi in Archives of Physical Medicine and Rehabilitation, 2013/9 (2013)  

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