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Article
Objective To describe changes in gross motor function and health-related quality of life (HRQOL) in adults with cerebral palsy (CP). Design An 8-year follow-up survey. Setting Participants who completed the baseline survey in 2003 were invite[...]Article
Objectives To describe long-term outcomes of neurogenic bowel dysfunction (NBD), determine changes over time in the type of bowel program, and determine changes in psychosocial outcomes associated with NBD-related factors in adults with pediatr[...]Article
Regina A. Abel, Auteur ; Esther Cho, Auteur ; Kelley R. Chadwick-Mansker, Auteur |OBJECTIVE. This article describes how adolescents with sickle cell disease (SCD) perceive their ability to perform everyday tasks required for transition to adult health care and independent living. METHOD. The Adolescent Autonomy Checklist (AAC[...]
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