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Auteur Karen Choong
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Associations of Participation-Focused Strategies and Rehabilitation Service Use With Caregiver Stress After Pediatric Critical Illness / Jessica M. Jarvis in Archives of Physical Medicine and Rehabilitation, Vol. 100, n° 4 (2019)
Titre : Associations of Participation-Focused Strategies and Rehabilitation Service Use With Caregiver Stress After Pediatric Critical Illness Type de document : Article Auteurs : Jessica M. Jarvis ; Karen Choong ; Mary A. Khetani Année de publication : 2019 Article en page(s) : p. 703-710 Langues : Anglais (eng) Descripteurs : HE Vinci
Pédiatrie ; Rééducation et réadaptation ; Soins de réanimation
Résumé : Objective(s)
Determine the associations between having participation-focused strategies and receiving rehabilitation services in the pediatric intensive care unit (PICU) with caregiver stress over 6 months post-PICU discharge.
Substudy of a data from Wee-Cover, a prospective cohort study.
Two PICU sites.
Caregivers (N=168) of children 1-17 years old admitted into a PICU for ≥48 hours.
Main Outcome Measures
Data were collected from caregivers at enrollment and 3 and 6 months post-PICU discharge. Caregiver stress was assessed using the Pediatric Inventory for Parents. Having strategies to support their childs participation in home-based activities was assessed using the Participation and Environment Measure (PEM). In PEM, caregivers report on strategies used to support their childs participation in home-based activities. Data were dichotomized (yes, no) to denote having participation-focused strategies and if their child received PICU rehabilitation services. Additional covariates were history of a preexisting condition, child age, length of PICU stay, and change in functional capacities at PICU discharge.
History of a preexisting condition, time, and change in functional capacities significantly predicted caregiver stress frequency and difficulty. The interaction of having strategies-by-rehabilitation-by-time significantly predicted caregiver stress frequency and difficulty.
Results highlight the role of early rehabilitation and the importance of working with caregivers to develop participation-focused strategies to support their childs functioning post-PICU. Families of children with a preexisting condition or those who experience a decrease in function during a PICU stay are susceptible to higher levels of stress and may be a priority population to target for rehabilitation services.
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in Archives of Physical Medicine and Rehabilitation > Vol. 100, n° 4 (2019) . - p. 703-710[article]