| Titre : | Health-Related Quality of Life Outcomes of a Telehealth Care Coordination Intervention for Children With Medical Complexity : A Randomized Controlled Trial (2018) |
| Auteurs : | Wendy S. Looman ; Robyn L. Hullsiek ; Lyndsay Pryor ; et al. |
| Type de document : | Article |
| Dans : | Journal of Pediatric Health Care (Vol. 32, n°1, January/February 2018) |
| Article en page(s) : | p. 63-75 |
| Langues: | Anglais |
| Descripteurs : |
HE Vinci Coordination ; Enfant (6-12 ans) ; Essai clinique ; Qualité de vie ; Soins infirmiers auprès des familles ; Télémédecine |
| Mots-clés: | Essai contrôlé randomisé ; Coordination des soins ; Pratique infirmière avancée ; Complication médicale |
| Résumé : | The purpose of this study was to explore health-related quality of life (HRQL) and family impact in the context of an advanced practice registered nurse–delivered telehealth care coordination intervention for children with medical complexity (CMC). This was a secondary outcomes analysis of a randomized controlled trial with 163 families of CMC in an existing medical home. HRQL and family impact were measured using the PedsQL measurement model. Bivariate and analysis of covariance analyses were conducted to explore associations at baseline and the intervention effect over 2 years. Significant predictors of Year 2 child HRQL were baseline HRQL and the presence of both neurologic impairment and technology dependence. There was no significant intervention effect on child HRQL or family impact after 24 months. Care coordination interventions for CMC may need to incorporate family system interventions for optimal outcomes in a range of quality of life domains. |
| Disponible en ligne : | Non |
Exemplaires (1)
| Cote | Support | Localisation | Section | Disponibilité |
|---|---|---|---|---|
| REV | Périodique papier | Woluwe | Espace revues | Consultation sur place uniquement Exclu du prêt |
