| Titre : | Children with Hepatitis C: The Impact of Disease and Treatment on Patients, Caregivers and Families (2017) |
| Auteurs : | Rachel A. Annunziato ; Samantha G. Lee ; Elizabeth Galici ; et al. |
| Type de document : | Article |
| Dans : | Journal of Pediatric Nursing (Vol. 32, January/February 2017) |
| Article en page(s) : | p. 8-11 |
| Langues: | Anglais |
| Descripteurs : |
HE Vinci Aidants ; Enfant (6-12 ans) ; Famille ; Hépatite C ; Interaction parent-enfant ; Qualité de vie ; Recherche scientifique ; Soins de l'enfant |
| Résumé : |
Abstract
Purpose Previous research on children with HCV has examined patient psychosocial outcomes but little is known about the impact of HCV and its prolonged treatment, which includes weekly injections and oral medications for 6–12 months, on caregivers and families. The present study aimed to address this gap. Design and Methods Using a case series design (N = 10), baseline distress levels of individuals and families as well as changes during HCV treatment were examined. A brief patient, caregiver, and family assessment packet was given before and immediately after treatment, but before the final outcome of treatment was known. During the study period, 10 families at our site began treatment for HCV. Each family was given a battery assessing patient quality of life, (the Pediatric Quality of Life Inventory; PedsQL), caregiver distress related to their child's illness (Impact of Events Scale; IES), and overall family functioning (Family Assessment Device; FAD). Results At baseline, patients displayed poorer quality of life than population norms, caregiver distress was elevated and family functioning was also in the “stressed” range. After treatment, all parameters worsened. Conclusions In conclusion, in this case series of patients in treatment for HCV, significant psychosocial distress was noted for individuals and families and this was exacerbated over the course of treatment. |
| Disponible en ligne : | Non |
Exemplaires (1)
| Cote | Support | Localisation | Section | Disponibilité |
|---|---|---|---|---|
| REV | Périodique papier | Woluwe | Espace revues | Consultation sur place uniquement Exclu du prêt |
