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Titre : | Development and evaluation of an intervention to support family caregivers of people with cancer to provide home-based care at the end of life : A feasibility study (2015) |
Auteurs : | K. Luker, Auteur ; M. Cooke, Auteur ; Laura B. Dunn, Auteur |
Type de document : | Article |
Dans : | European Journal of Oncology Nursing (Vol. 19, n° 2, April 2015) |
Article en page(s) : | p. 154-161 |
Langues: | Anglais |
Descripteurs : |
HE Vinci Accompagnement de l'apprenant ; Compétence ; Famille ; Malades en phase terminale ; Oncologie médicale ; Recherche ; Relation ; Soignants ; Soins à domicile ; Soins palliatifs |
Résumé : |
Purpose
To design and evaluate an intervention to address carers' needs for practical information and support skills when caring for a person with cancer at end of life. Method Phase I 29 carers were interviewed about need for practical information, support skills and their preferences for information delivery. The preferred format was a booklet. Phase 2 evaluated the booklet. 31 carers and 14 district nurses participated. Validated questionnaires: on perceptions of caregiving and carer health before and after the booklet was used and interviews with both carers and nurses were untertaken.24 carers completed both interviews. Quantitative data were coded using scale manuals and analysed using SPSSv20 and interview data was analysed thematically. Results Carers were aged 3182 and cared for people aged 5092; 8 carers were male and 23 female; 20 cared for a partner, 8 for a parent and 1 for a sibling (2 undisclosed). Carers were positive about the booklet, however many carers would have liked the booklet earlier. Carers reported feeling more positive about caregiving, and more reassured and competent in their role. District nurses found the booklet useful and reported receiving fewer phone calls from study carers than others in similar situations. Conclusions The booklet intervention was a source of reassurance to carers and it has the potential to be incorporated into everyday practice. The challenge is in when and how to distribute the booklet and more work is required on the timing of delivery in order to maximise the usefulness of booklet to carers. |
Disponible en ligne : | Non |
Exemplaires (1)
Cote | Support | Localisation | Section | Disponibilité |
---|---|---|---|---|
REV | Périodique papier | Woluwe | Espace revues | Consultation sur place uniquement Exclu du prêt |