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Titre : | Experiences of teenagers and young adults treated for cancer in Sweden (2015) |
Auteurs : | Maria Olsson ; Marianne Jarfelt ; Pernilla Pergert ; et al. |
Type de document : | Article |
Dans : | European Journal of Oncology Nursing (Vol. 19, n° 5, October 2015) |
Article en page(s) : | p. 575-581 |
Langues: | Anglais |
Descripteurs : |
HE Vinci Adolescent ; Besoin ; Qualité de vie ; Suède ; Tumeurs |
Résumé : |
Purpose
Approximately 600 teenagers and young adults, TYAs (ages 1529), are newly diagnosed with cancer in Sweden every year and treated in many different units. The knowledge about TYAs is limited and there might be a need for a new approach in the care for this particular age group. The purpose of this study was to identify requirements TYAs in Sweden acknowledge as important to them. Methods 44 participants aged 1529 who were treated at either pediatric or adult cancer units in Sweden, participated in focus group interviews. They were interviewed in groups based on whether they were treated in pediatric (1418 years old) or adult units (1829). The focus group interviews were recorded, transcribed, and analyzed using qualitative content analysis. Results Results of the study can be summarized into four categories: personal professional interaction, knowledge and participation, age-appropriate environment, and support. Important TYA care needs vary over time due to individual situations. The time line of the cancer experience can be described as a continuum; at diagnosis, during treatment, and in life-after cancer treatment. Conclusions TYAs treated in Sweden have special needs that are not being satisfied, whether at pediatric or adult units. Areas that need closer attention are: close relatives' participation in the care, information on sex and fertility, age-appropriate social physical environments during treatment, and psychosocial support after treatment. In Sweden, there is a demand for increased knowledge on the special needs for TYAs in clinical practice. |
Disponible en ligne : | Non |
Exemplaires (1)
Cote | Support | Localisation | Section | Disponibilité |
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REV | Périodique papier | Woluwe | Espace revues | Consultation sur place uniquement Exclu du prêt |