| Titre : | Implications for Advanced Practice Nurses When Pediatric Autoimmune Neuropsychiatric Disorders Associated With Streptococcal Infections (PANDAS) Is Suspected : A Qualitative Study (2015) |
| Auteurs : | Molly Mcclelland, Auteur ; Mary-Margaret Crombez, Auteur ; Catherine Wenz, Auteur ; et al., Auteur |
| Type de document : | Article |
| Dans : | Journal of Pediatric Health Care (Vol. 29, n°5, September/October 2015) |
| Article en page(s) : | p. 442-552 |
| Langues: | Anglais |
| Descripteurs : |
HE Vinci Evidence-based nursing ; Famille ; Infections bactériennes ; Maladies auto-immunes ; Personnel de santé ; Pharyngite ; Pratique professionnelle ; Recherche ; Revue de la littérature ; Soins de l'enfant ; Streptococcie ; Thérapeutique |
| Résumé : |
Abstract
Introduction Pediatric autoimmune neuropsychiatric disorder associated with streptococcal infections (PANDAS) is a relatively new but controversial diagnosis affecting hundreds of children and their families. It is generally thought to be an autoimmune disorder resulting from a streptococcal infection that causes significant and bizarre behavioral changes in children. Currently no definitive diagnostic or treatment modalities exist, which has led to misdiagnoses, ineffective treatments, and delayed care. Methods A qualitative study was conducted that included 60 families with at least one child diagnosed with PANDAS. The purpose was to explore how families experience the disorder and what nurses can do to provide effective care. Results Using paradigmatic analysis of transcribed interviews, three themes were identified: fear, frustration, and not being heard. Discussion Results from this study suggest that more information is needed to better understand this challenging phenomenon from both medical and nursing perspectives. The study also reaffirms the importance of practicing the art of nursing, especially when the science is not yet established. |
| Disponible en ligne : | Non |
Exemplaires (1)
| Cote | Support | Localisation | Section | Disponibilité |
|---|---|---|---|---|
| REV | Périodique papier | Woluwe | Espace revues | Consultation sur place uniquement Exclu du prêt |
