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Titre : | Multiple Sustainable Benefits of a Rehabilitation Program in Therapeutic Management of Hypermobile Ehlers-Danlos Syndrome: A Prospective and Controlled Study at Short- and Medium-Term (2023) |
Auteurs : | Adrien Hakimi ; Cyrille Bergoin ; Anna De Jesus ; Anne Hoorelbeke ; Philippe Ramon ; Oana Florea ; Claudine Fabre ; Patrick Mucci |
Type de document : | Article |
Dans : | Archives of Physical Medicine and Rehabilitation (Vol. 104, n° 12, 2023) |
Article en page(s) : | p. 2059-2066 |
Note générale : | https://doi.org/10.1016/j.apmr.2023.06.012 |
Langues: | Anglais |
Descripteurs : |
HE Vinci Exercice physique ; Fatigue ; Qualité de vie ; Réadaptation ; Syndrome d'Ehlers-Danlos |
Résumé : | Objective To evaluate the effects of a 9-week rehabilitation program (RP) for patients with hypermobile Ehlers-Danlos syndrome (hEDS) in the short- and medium-term. Design Nonrandomized controlled trial with 6 months follow-up. Setting Outpatient rehabilitation program. Participants A referred sample of 36 hEDS patients were assessed for eligibility (N=36), 25 were included, 22 completed the RP and 19 completed the follow-up. Interventions A 9 -week control period without intervention followed by a 9-week RP. Main Outcome Measure Functional exercise capacity was used as a primary outcome measure. Balance, kinesiophobia, fatigue, pain, quality of life, anxiety, depression, and hyperventilation were measured as secondary outcomes. Results No significant change was observed during the 9-week control period before the RP. There was a significant improvement immediately after the RP for the functional exercise capacity, balance with eyes closed, fatigue, and quality of life (P<.05 even more improvements were found weeks after the end of rp and there was still an improvement months in functional exercise capacity kinesiophobia depression hyperventilation some components quality life. conclusion this study supports effectiveness as a useful management tool for heds patients.> |
Disponible en ligne : | Oui |
En ligne : | https://login.ezproxy.vinci.be/login?url=https://www.sciencedirect.com/science/article/pii/S0003999323003702 |