| Titre : | Responsiveness of the Traumatic Brain Injury–Quality of Life (TBI-QOL) Measurement System (2020) |
| Auteurs : | Julia M.P. Poritz ; Mark Sherer ; Pamela A. Kisala |
| Type de document : | Article |
| Dans : | Archives of Physical Medicine and Rehabilitation (Vol. 101, n° 1, 2020) |
| Article en page(s) : | p. 54-61 |
| Note générale : | https://doi.org/10.1016/j.apmr.2017.11.018 |
| Langues: | Anglais |
| Descripteurs : |
HE Vinci Lésions traumatiques de l'encéphale ; Mesures des résultats rapportés par les patients (PROM) ; Qualité de vie |
| Résumé : |
Objective
To assess the responsiveness of the Traumatic Brain Injury–Quality of Life (TBI-QOL) measurement system. Design Participants completed the 20 TBI-QOL item banks and the Participation Assessment with Recombined Tools–Objective (PART-O) Productivity Subscale at baseline and 6-month follow-up assessments. Participants were categorized into 4 groups (increased productivity, unchanged productivity, and decreased productivity) based on PART-O Productivity scores. Paired sample t tests were used to compare TBI-QOL scores at baseline and 6 months, and standardized response means and Cohen's d were computed to estimate effect sizes. Setting Three traumatic brain injury (TBI) Model Systems rehabilitation centers in the United States. Participants Two hundred one community-dwelling adults with TBI. Interventions Not applicable. Main Outcome Measures 20 TBI-QOL item banks. Results As expected, given that there was no intervention, group mean TBI-QOL subdomain scores for the entire sample showed no change or small improvement over the 6-month study period. At the follow-up assessment, 72 participants reported increased productivity, 71 reported decreased productivity, and 58 reported the same level of productivity as they had 6 months prior. When compared with participants who reported unchanged or decreased productivity, participants who reported increased productivity on the PART-O subscale had clinically meaningful (d≥0.30) improvements on 7 TBI-QOL measures. The largest improvement was in the Independence subdomain (mean change, 7.06; df=0.84), with differences also observed in the Mobility, Positive Affect and Well-Being, Resilience, Grief/Loss, Ability to Participate, and Satisfaction with Participation subdomains. Conclusions The 20 TBI-QOL item banks demonstrate responsiveness to change and measurement stability in a community-dwelling sample. Researchers may use the TBI-QOL to detect changes in HRQOL after a clinical intervention and clinicians may use it in their daily practices to monitor patient recovery. |
| Disponible en ligne : | Oui |
| En ligne : | https://login.ezproxy.vinci.be/login?url=https://www.sciencedirect.com/science/article/pii/S0003999318300431 |
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