| Titre : | Psychological Distress, Quality of Life, and Burden in Caregivers During Community Reintegration After Spinal Cord Injury (2014) |
| Auteurs : | James W. Middleton ; Grahame K. Simpson ; Annelies De Wolf |
| Type de document : | Article |
| Dans : | Archives of Physical Medicine and Rehabilitation (2014/7, 2014) |
| Article en page(s) : | p. 1312-1319 |
| Langues: | Anglais |
| Descripteurs : |
HE Vinci Aidants ; Qualité de vie ; Rééducation et réadaptation ; Traumatismes de la moelle épinière |
| Mots-clés: | Caregivers ; Quality of life ; Spinal cord injuries |
| Résumé : |
Objectives To examine relations between psychological distress, health-related quality of life (HR-QOL), and burden among caregivers of people with traumatic spinal cord injury (SCI) over time, and to determine whether the data are more consistent with a wear and tear or adaptation trajectory. Design Prospective longitudinal cohort study with measurements at 4 time points (6wk prior to discharge from subacute inpatient rehabilitation and 6wk, 1y, and 2y postdischarge to community). Setting Rehabilitation units. Participants Participants (N=44; spouses, parents, others) nominated as a primary caregiver by the person with SCI. Interventions Not applicable. Main Outcome Measures General Health Questionnaire-28 (GHQ-28), Medical Outcomes Study 36-Item Short-Form Health Survey (SF-36), and Caregiver Strain Index (CSI) assessed the extent of psychological distress, HR-QOL, and burden, respectively, among caregivers. Functional status and community participation/care needs of the persons with SCI were assessed by the FIM and Craig Handicap Assessment and Reporting Technique, respectively. Results Multilevel piecewise models showed that psychological distress (GHQ-28 score) decreased significantly after discharge (slope estimate =−.03, P<.008 at the predischarge time point caregivers mental component summary score on sf-36 was significantly lower than australian national norms. scores improved from to weeks postdischarge estimate=".39," p but they did not change across following points all were different in contrast physical of and caregiver burden showed no significant over study period slope estimates reflecting this met csi caseness criterion first fourth point. higher correlated with increased hours care being provided by fim community participation person sci each psychological distress year years postdischarge.> Conclusions The trajectory of scores for psychological distress and HR-QOL was consistent with caregiver adaptation to the challenge of providing support to a person with SCI in the early postdischarge period. Caregiver burden did not display similar reductions but did not worsen over the study period. |
| Disponible en ligne : | Oui |
| En ligne : | https://login.ezproxy.vinci.be/login?url=https://www.sciencedirect.com/science/article/pii/S0003999314002573 |
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