| Titre : | Conceptual Underpinnings of the Quality of Life in Neurological Disorders (Neuro-QoL): Comparisons of Core Sets for Stroke, Multiple Sclerosis, Spinal Cord Injury, and Traumatic Brain Injury (2018) |
| Auteurs : | Alex W.K. Wong ; Stephen C.L. Lau ; Mandy W.M. Fong |
| Type de document : | Article |
| Dans : | Archives of Physical Medicine and Rehabilitation (Vol. 99, n° 9, 2018) |
| Article en page(s) : | p. 1763-1775 |
| Langues: | Anglais |
| Descripteurs : |
HE Vinci Accident vasculaire cérébral (AVC) ; Rééducation et réadaptation ; Sclérose en plaques ; Traumatismes de la moelle épinière |
| Mots-clés: | Brain injuries ; Lésions encéphaliques ; International Classification of Functioning ; Disability and Health ; Classification internationale du fonctionnement ; du handicap et de la santé ; Multiple sclerosis ; Outcome and Process Assessment (Health Care) ; Évaluation des résultats et des processus en soins de santé ; Spinal cord injuries ; Stroke |
| Résumé : |
Objective To determine the extent to which the content of the Quality of Life in Neurological Disorders (Neuro-QoL) covers the International Classification of Functioning, Disability and Health (ICF) Core Sets for multiple sclerosis (MS), stroke, spinal cord injury (SCI), and traumatic brain injury (TBI) using summary linkage indicators. Design Content analysis by linking content of the Neuro-QoL to corresponding ICF codes of each Core Set for MS, stroke, SCI, and TBI. Setting Three academic centers. Participants None. Interventions None. Main Outcome Measures Four summary linkage indicators proposed by MacDermid et al were estimated to compare the content coverage between Neuro-QoL and the ICF codes of Core Sets for MS, stroke, MS, and TBI. Results Neuro-QoL represented 20% to 30% Core Set codes for different conditions in which more codes in Core Sets for MS (29%), stroke (28%), and TBI (28%) were covered than those for SCI in the long-term (20%) and early postacute (19%) contexts. Neuro-QoL represented nearly half of the unique Activity and Participation codes (43%–49%) and less than one third of the unique Body Function codes (12%−32%). It represented fewer Environmental Factors codes (2%−6%) and no Body Structures codes. Absolute linkage indicators found that at least 60% of Neuro-QoL items were linked to Core Set codes (63%−95%), but many items covered the same codes as revealed by unique linkage indicators (7%−13%), suggesting high concept redundancy among items. Conclusions The Neuro-QoL links more closely to ICF Core Sets for stroke, MS, and TBI than to those for SCI, and primarily covers activity and participation ICF domains. Other instruments are needed to address concepts not measured by the Neuro-QoL when a comprehensive health assessment is needed. |
| Disponible en ligne : | Oui |
| En ligne : | https://login.ezproxy.vinci.be/login?url=https://www.sciencedirect.com/science/article/pii/S0003999318302065 |
Bibliothèques HE Vinci
