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Titre : | English Cross-Cultural Translation and Validation of the Neuromuscular Score: A System for Motor Function Classification in Patients With Neuromuscular Diseases (2014) |
Auteurs : | Carole Vuillerot ; Katherine G. Meilleur ; Minal Jain |
Type de document : | Article |
Dans : | Archives of Physical Medicine and Rehabilitation (2014/11, 2014) |
Article en page(s) : | p. 2064-2070 |
Langues: | Anglais |
Descripteurs : |
HE Vinci Activités de la vie quotidienne ; Rééducation et réadaptation |
Mots-clés: | Activities of daily living ; Disability evaluation ; Évaluation de l'incapacité ; Neuromuscular diseases ; Maladies neuromusculaires |
Résumé : |
Objective To develop and validate an English version of the Neuromuscular (NM)-Score, a classification for patients with NM diseases in each of the 3 motor function domains: D1, standing and transfers; D2, axial and proximal motor function; and D3, distal motor function. Design Validation survey. Setting Patients seen at a medical research center between June and September 2013. Participants Consecutive patients (N=42) aged 5 to 19 years with a confirmed or suspected diagnosis of congenital muscular dystrophy. Interventions Not applicable. Main Outcome Measures An English version of the NM-Score was developed by a 9-person expert panel that assessed its content validity and semantic equivalence. Its concurrent validity was tested against criterion standards (Brooke Scale, Motor Function Measure [MFM], activity limitations for patients with upper and/or lower limb impairments [ACTIVLIM], Jebsen Test, and myometry measurements). Informant agreement between patient/caregiver (P/C)-reported and medical doctor (MD)-reported NM scores was measured by weighted kappa. Results Significant correlation coefficients were found between NM scores and criterion standards. The highest correlations were found between NM-score D1 and MFM score D1 (ρ=−.944, P<.0001 activlim p and hip abduction strength by myometry informant agreement between md-reported nm scores was high for d1 confidence interval .701 but moderate d2 ci .412 d3 .290 correlation coefficients the criterion standards did not significantly differ scores.> Conclusions Patients and physicians completed the English NM-Score easily and accurately. The English version is a reliable and valid instrument that can be used in clinical practice and research to describe the functional abilities of patients with NM diseases. |
Disponible en ligne : | Oui |
En ligne : | https://login.ezproxy.vinci.be/login?url=https://www.sciencedirect.com/science/article/pii/S0003999314003682 |