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Pamela A. Kisala ; David Victorson ; Ratna Nandakumar ; Andrew Shermeyer ; Denise C. Fyffe ; Allen W. Heinemann ; Trevor A. Dyson-Hudson ; David S. Tulsky |Objectives To develop clinically relevant interpretive standards for the Spinal Cord Injury–Functional Index/Capacity (SCI-FI/C) Basic Mobility and Self-Care item bank scores. Design Modified “bookmarking” standard-setting methodology, in[...]Article
Objective To develop and evaluate the psychometric properties of an item set measuring economic quality of life (QOL) for use by individuals with disabilities. Design Survey. Setting Community settings. Participants Individuals with disabili[...]Article
Objective To develop an item response theory (IRT)-calibrated, patient-reported outcome measure of subjective independence for individuals with traumatic brain injury (TBI). Design Large-scale item calibration field testing; confirmatory [...]Article
Objectives To understand the factor structure of health-related quality of life specific to caregivers of people living with traumatic brain injury (TBI). Design Prospective, cross-sectional data collection. Setting Three TBI Model Syst[...]Article
David S. Tulsky ; Pamela A. Kisala ; Callie E. Tyner ; Jerry Slotkin ; Christina Kaufman ; Christopher L. Dearth ; Annamarie D. Horan ; Simon G. Talbot ; Jaimie T. Shores ; Kodi Azari ; Curtis Cetrulo ; Gerald Brandacher ; Carisa M. Cooney ; David Victorson ; Mary Dooley ; L. Scott Levin ; CDR Scott M. Tintle |Objective To identify the most important health-related quality of life (HRQOL) domains and patient-reported outcomes after upper extremity transplantation (UET) in individuals with upper extremity amputation. Design Verbatim audio-recordings of[...]Article
Noelle E. Carlozzi ; Christopher Graves ; Jonathan P. Troost ; Michael A. Kallen ; David S. Tulsky ; Robin A. Hanks ; Phillip A. Ianni ; Jennifer A. Miner ; Angelle M. Sander |Objective To provide reliability and validity data to support the clinical utility of Economic Quality of Life Measure (Econ-QOL) scores in caregivers of civilians and service members/veterans with traumatic brain injury (TBI). Design Cross-sect[...]Article
Objective To link 3 Spinal Cord Injury–Functional Index (SCI-FI) item banks (Basic Mobility, Fine Motor Function, Self-Care) to the Patient-Reported Outcome Measurement Information System (PROMIS) Physical Function (PF) metric. Design Obs[...]Article
The Spinal Cord Injury–Functional Index (SCI-FI) is a system of patient-reported outcome measures of functional activities developed specifically with and for individuals with spinal cord injury (SCI). The SCI-FI was designed to overcome limitat[...]Article
David S. Tulsky ; Aaron J. Boulton ; Pamela A. Kisala ; Allen W. Heinemann ; Susan Charlifue ; Claire Z. Kalpakjian ; Allan J. Kozlowski ; Elizabeth R. Felix ; Denise C. Fyffe ; Mary D. Slavin ; Denise G. Tate |Objective To explore trajectories of functional recovery that occur during the first 2 years after spinal cord injury (SCI). Design Observational cohort study. Setting Eight SCI Model System sites. Participants A total of 479 adul[...]Article
Objectives To evaluate the psychometric properties of the Spinal Cord Injury–Functional Index/Assistive Technology (SCI-FI/AT) short forms (SFs) in the domains of basic mobility, self-care, fine motor function, and ambulation based on internal [...]Article
Pamela A. Kisala ; Aaron J. Boulton ; Mary D. Slavin ; Matthew L. Cohen ; Tamra Keeney ; Pengsheng Ni ; Denise G. Tate ; Allen W. Heinemann ; Susan Charlifue ; Denise C. Fyffe ; Elizabeth R. Felix ; Alan M. Jette ; David S. Tulsky |Objective To establish responsiveness of 3 Spinal Cord Injury–Functional Index/Capacity (SCI-FI/C) item banks in the first year after spinal cord injury (SCI). Design Longitudinal patient-reported outcomes assessment replicated through se[...]Article
Callie E. Tyner ; Pamela A. Kisala ; Allen W. Heinemann ; Denise C. Fyffe ; Denise G. Tate ; Mary D. Slavin ; Alan M. Jette ; David S. Tulsky |Objective To evaluate the psychometric properties of the Spinal Cord Injury–Functional Index (SCI-FI) instruments in a community-dwelling sample. Design Cross-sectional study. Setting Community setting. Participants Individuals (N[...]
