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Titre : | Experiences of Daily Life Among Adolescents With Asthma : A Struggle With Ambivalence (2017) |
Auteurs : | Marina Jonsson ; Marja Schuster ; Jennifer L.P. Protudjer ; et al. |
Type de document : | Article |
Dans : | Journal of Pediatric Nursing (Vol. 35, July/August 2017) |
Article en page(s) : | p. 23-29 |
Langues: | Anglais |
Descripteurs : |
HE Vinci Adolescent ; Asthme ; Pédiatrie |
Mots-clés: | Soins centrés sur le patient |
Résumé : |
Objective
There is limited knowledge about how adolescents with asthma view their disease in daily life and how these views impact on management. The aim of this study was to describe experiences of daily life, with particular focus on thoughts, feelings and management of adolescents with asthma. Methods In this qualitative study, data were obtained from 10 interviews with adolescents (aged 1618 years) with asthma recruited from the Swedish population-based prospective birth cohort, BAMSE. Data were analysed through Systematic Text Condensation. Results Experiences of daily life among adolescents with asthma were defined in four categories: Insight and understanding; Asthma not the focus of daily life; Being acknowledged and, Being affected by asthma symptoms. The adolescents had developed an insight into and understanding of their disease, but did not want asthma to be the focus of their daily lives. The adolescents wanted their asthma to be acknowledged, but not to the point that they were defined by their asthma. They reported having many asthma symptoms, especially during physical activity, but also described a desire to feel healthy, normal and like their peers. Conclusions Having asthma in adolescence involves several struggles with ambivalence between adapting socially, feeling healthy and managing one's asthma. Implications in Clinical Practice The provision of person-centred care may be one way to handle the ambivalence among adolescents with asthma and thereby help them to manage their asthma. |
Disponible en ligne : | Non |
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REV | Périodique papier | Woluwe | Espace revues | Consultation sur place uniquement Exclu du prêt |