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Vol. 30, n°1 January/February 2015 | Vol. 30, n°2 March/April 2015 | Vol. 30, n°3 May/June 2015 | Vol. 30, n°4 July/August 2015 |
Titre : | Journal of Pediatric Nursing, Vol. 30, n°1. - January/February 2015 |
Type de document : | Bulletin |
Paru le : | 01/01/2015 |
Dépouillements
Article
Agneta Anderzén-carlsson, Auteur
|
CHARGE syndrome is characterized by impaired vision and hearing, as well as physical malformations. The aim of this study is to describe the characteristics of the malformations and the health care consumption during the first year, in a Swedish[...]
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Article
Only half of the mothers experienced chronic sorrow.
The other half experienced feelings of fright, anger or being overwhelmed that the researcher classified as unpleasant feelings.
One overarching them[...]
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Article
Barbara L. Beacham, Auteur ;
Janet A. Deatrick, Auteur
|
Children may better understand condition management within the context of routines.
Children develop perspectives about their condition and its management.
Children's reports are consistent with the famil[...]
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Article
Beth Cardell, Auteur ;
Lauren Clark, Auteur ;
Marjorie A. Pett, Auteur
|
Youth with disabilities can successfully participate in health research.
Simple changes to materials, instructions, and research context promote inclusion.
Development of population specific, standardized measures and equipment [...]
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Article
Jane Coad, Auteur ;
Jasveer Kaur, Auteur ;
Nicky Ashley, Auteur
|
This article presents an original study commissioned by the UK charity, Together for Short Lives which explored children and young people up to 25 years of age with life-threatening/limiting conditions and their families. Using Appreciativ[...]
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Article
Lesley Lowes, Auteur ;
Danielle Eddy, Auteur ;
Sue Channon, Auteur ;
et al., Auteur
|
This study explores children's and carers' perceptions of living with type 1 diabetes and their experience of clinic attendance
Pediatric diabetes health care professionals need communication skills training
There[...]
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Article
V. Lambert, Auteur ;
Deborah Keogh, Auteur
|
This paper presents a review of findings from qualitative studies on childrens experience of feeling different when living with the long term conditions; diabetes, epilepsy and asthma. Following electronic database and hand searches of referenc[...]
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Article
Kate Oulton, Auteur ;
Debbie Sell, Auteur ;
Sam Kerry, Auteur ;
et al., Auteur
|
This ethnographic study sought parent, patient and staff views about the needs of children and young people with learning disability and their families during hospitalization. Reported here are data from 27 staff. The need for individualized car[...]
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Article
Susie Aldiss, Auteur ;
Christina Baggott, Auteur ;
Faith Gibson, Auteur ;
et al., Auteur
|
Advances in technology have offered health professionals alternative mediums of providing support to patients with long-term conditions. This critical review evaluated and assessed the benefit of electronic media technologies in supporting child[...]
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Article
Christiane Knecht, Auteur ;
Claudia Hellmers, Auteur ;
Sabine Metzing, Auteur
|
This review gives an overview about the existing research concerning siblings' perspective within the familial experiences of childhood chronic illness. Besides attaining a conception of their world, it was intended to identify the unacknowledge[...]
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Article
A mixed-method, qualitative dominant design was implemented to understand how visible changes in appearance, and function, govern childhood burn survivors' and their siblings' perceptions of their body image (BI). Thirteen cases (n = [...]
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Article
Dava E. Szalda, Auteur ;
Manuel E. Jimenez, Auteur ;
Jeremiah E. Long, Auteur ;
et al., Auteur
|
Over 90% of children with chronic conditions survive into adulthood necessitating primary care teams to care for adults with pediatric-onset chronic conditions. This study explores practice supports and barriers to care for this population via q[...]
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Article
Jennifer Baird, Auteur ;
Betty Davies, Auteur ;
Pamela S. Hinds, Auteur ;
et al., Auteur
|
Patient and family-centered care (PFCC) is the foundation for pediatric healthcare. The existence of hospital rules can, however, impact the extent to which PFCC is delivered. This qualitative, grounded theory study identified the existence of e[...]
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Article
Joanna Smith, Auteur ;
Veronica Swallow, Auteur ;
Imelda Coyne, Auteur
|
Background
Fostering effective engagement, collaboration and empowerment are central to supporting parents caring for children with long-term conditions.
Methods
A concept synthesis was undertaken to identify the shared antecedents and at[...]
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Article
Ying Zhang, Auteur ;
Min Wei, Auteur ;
Nanping Shen, Auteur ;
et al., Auteur
|
This study was designed to determine the key predictors for each aspect of family management of families with children who have chronic conditions in China. The participants included 399 caregivers whose children have chronic illnesses. We used [...]
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Article
Rika M. L. Meyer, Auteur ;
Angela Li, Auteur ;
Jessica Klaristenfeld, Auteur ;
et al., Auteur
|
We investigated whether compassion fatigue mediated associations between nurse stress exposure and job satisfaction, compassion satisfaction, and burnout, controlling for pre-existing stress. The Life Events Checklist was administered to 251 nov[...]
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Article
Kim Mooney-Doyle, Auteur ;
Janet A. Deatrick, Auteur ;
June Andrews Horowitz, Auteur
|
Every day, normative functions of parenting and their significance are under-investigated. An integrative review of tasks and communication involved in parenting young children informed by Horowitz (1995) and Blumer (1969) was conducted.Research[...]
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Article
Pei-Ching Liu, Auteur ;
Bih-Shya Gau, Auteur ;
Chao-Chia Hung, Auteur
|
Background
No specific instrument has thus far been developed for measuring the caregiver burden perceived by parents of children with allergies (CWA).
Objectives
To determine the psychometric properties of the Caregiver Burden Index (CBI[...]
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Article
Sandra A. Banta-wright, Auteur ;
Sheila M. Kodadek, Auteur ;
Robert D. Steiner, Auteur ;
Gail M. Houck, Auteur
|
Breastfeeding duration for infants with phenylketonuria (PKU) is less than other full-term infants. However, no study has examined the challenges encountered by mothers' breastfeeding infants with PKU. In 75 mothers of a child with PKU, three ca[...]
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Article
Nerissa S. Bauer, Auteur ;
Vibha Anand, Auteur ;
Aaron E. Carroll, Auteur ;
et al., Auteur
|
Little is known about the association of secondhand smoke (SHS) exposure and behavioral conditions among preschoolers. A cross-sectional analysis was used to examine billing and pharmacy claims from November 2004 to June 2012 linked to medical e[...]
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Article
Anna M. Gravelle, Auteur ;
Mary Paone, Auteur ;
George A. Davidson, Auteur ;
et al., Auteur
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The adequate preparation of cystic fibrosis (CF) youth for the transfer from pediatric to adult-based health care services is essential to meet the needs of this changing population. This paper describes the evolution of a transition clinic for [...]
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Article
Mary Kay Irwin, Auteur ;
Megan P. Elam, Auteur ;
Ashley L. Merianos, Auteur ;
et al., Auteur
|
Given the increasing emphasis on care coordination between healthcare and schools, hospitalschool liaison services are increasing in demand. Limited research examines hospitalschool liaison programs that focus on educational journeys of school[...]
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Article
Elif Bilsin, Auteur ;
Döndü Cuhadar, Auteur
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This descriptive research was carried out to identify the relationship between the needs of those mothers who have hearing impairment children and their state/trait anxiety levels. Significant positive relationships were found between the mother[...]
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